2009 -

1/1/09 – M-Spike: 1.2, having severe anxiety began 1 xanax per day – resolves the problem.  Not needed every day. Lost another 5 lbs – down to 220.

2/1/09 – M-Spike: 1.2, begin weening off of Percocet – down to 1 pill per day.  Begin weening off of ambien – down to ½ pill per day.

3/1/09 – M-Spike: .9 – noticeable improvement in sleeping.   Probably sleep good 6 nights per week.  Noticeable improvement in the neuropathy.  Nothing in hands, feet are getting much better.  Maybe this will be healed by summer.

Thinking about playing a little softball this summer.

4/1/09 – M-Spike: 1.14

5/1/09 – M-Spike: 1.7 must go back in 2 weeks for another test, it looks like counts are rising.

6/1/09 – HDA commits to 6 months of work (minimum)

6/1/09 – M-Spike: 1.9  Will start study in July.  Played several weeks of Softball.

7/1/09 – M-Spike: 2.4 (measured by study lab – which tends to run higher than Siteman) Beginning Revlimid (25mg), Dex (20mg), Elotuzumab study

8/1/09 – M-Spike: .9 treatment is working.

8/17/09 – M-Spike: .8

9/1/09 – Working 50+ hours per week at HDA.  Strength is still quite good.  Sleeping pretty well.  Neuropathy gone from hands and much better in feet – pain nearly gone. 

9/1/09 – M-Spike: .7

9/15/09 – M-Spike: .7

9/29/09 – M-Spike: .7

10/13/09 – M-Spike: .7 (as measured by study), .6 (as measured by Siteman)

10/27/09 – M-Spike: .5 (record low for me)

11/10/09 – M-Spike: .4 (record low for me)

11/24/09 – M-Spike: .6

12/29/09 – 6/1/10 – M-Spike: bouncing between .4-.6, IGG: in low 800s (really good)

2008 -

1/1/08 – M-Spike: 1.6 after no Dex for a month, Begin Carfilzomib, strength returning, sleeping somewhat better, face not as swollen, neuropathy may be worse.

3/1/08 – M-Spike: 1.4, begin Zometa again

4/1/08 – M-Spike: 1.5

5/1/08 – began taking norvasc (amlodipine) for elevated blood pressure

6/1/08 – M-Spike: 1.4, regaining strength, began taking neurontin (gabapentin) for neuropathy

7/1/08 – M-Spike: 1.1, lost 12 lbs, feeling much stronger, blood pressure back to normal

8/1/08 – M-Spike: 1.1

9/1/08 – M-Spike: 1.2

10/1/08 – M-spike: 1.4

11/1/08 – M-spike: 1.2

11/1/08 – St. John’s Mercy acquires St. Louis Cancer & Breast.  Lynda while being part-time can get reasonably priced benefits – including health insurance.

11/24/08 – I learn that I will lose my job with Integra

12/1/08 – M-Spike: 1.2, completed Carfilzomib study, TAKING A BREAK FROM CHEMO, restarted amlodipine for blood pressure

12/12/08 – Last day of work with Integra

12/15/08 - Begin consulting with HDA

12/21/08 – M-Spike: 1.2, lost 20 lbs, feeling better and better, still not sleeping consistently.

2007 -

1/1/07 – M-Spike: 1.4 (results from study labs, so they vary slightly from previous lab)

2/1/07 – M-Spike: 1.4 (results from study labs, so they vary slightly from previous lab)

3/1/07 – M-Spike: 1.4 (results from study labs, so they vary slightly from previous lab)

4/1/07 – M-Spike: 1.5 (reduced Dex in half 20/20/20/10/10 – M-Spike starting upward)

5/1/07 – M-Spike: 1.6

6/1/07 – M-Spike: 1.7

6/27/07 – Layed off from Harris

7/1/07 – M-Spike: 1.2 (increased Dex back to 40/40/40/20/20/10, M-Spike back down)

8/1/07 – M-Spike: 1.2

8/6/07 – Begin working at Integra

9/1/07 – M-Spike: 1.2

10/1/07 – M-Spike: 1.2

11/1/07 – M-Spike: 1.4

12/1/07 – M-Spike: 1.5 stopped Dex – must stop Denosumab study due to rising M-Spike, planning to move to Carfilzomib and return to Zometa